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Resources

  • Educate yourself on the position of the federal government

ADA (Americans with Disabilities Act  1990) http://www.ada.gov/ –

The Americans with Disabilities Act is a plenary civil rights statute designed to halt all practices that segregate persons with disabilities and those that treat them . . . differently. 

ACL  (Administration for Community Living) http://www.hhs.gov/acl/

HHS is creating a new organization, the Administration for Community Living (ACL) with the goal of increasing access to community supports and full participation, while focusing attention and resources on the unique needs of older Americans and people with disabilities.

Olmstead Supreme Court Decision 1999  http://www.worksupport.com/resources/printView.cfm/376

On June 22, 1999, the U. S. Supreme Court ruled in the case Olmstead v. L.C. and E.W. that the “integration mandate” of the Americans with Disabilities Act requires public agencies to provide services “in the most integrated setting appropriate to the needs of qualified individuals with disabilities.” 

  • How does Medicaid effect the equation?

HCBS Regulations https://www.medicaid.gov/Medicaid-CHIP-Program-Information/By-Topics/Long-Term-Services-and-Supports/Home-and-Community-Based-Services/Home-and-Community-Based-Services.html

Home and community-based services (HCBS) provide opportunities for Medicaid beneficiaries to receive services in their own home or community. These programs serve a variety of targeted populations groups, such as people with mental illnesses, intellectual or developmental disabilities, and/or physical disabilities.The final Home and Community-Based Services regulations set forth new requirements for several Medicaid authorities under which states may provide home and community-based long-term services and supports. The regulations are intended to enhance the quality of HCBS and provide additional protections to individuals that receive services under these Medicaid authorities.

Medicaid Waiver  http://www.unlockthewaitinglists.com/MedicaidWaiverManual.pdfhttp://www.ehow.com/about_5114767_medicaid-waiver.html

The Medicaid waiver program is a state-level program that helps pay for health-care services for people who have developmental disabilities. It gives states the freedom to “waive” some of the federal requirements that people need to fulfill in order to be eligible for Medicaid. In the past, Medicaid was only available to people who were institutionalized, but the Medicaid waiver makes it possible for disabled people to receive health-care services at home or at community level. About 75 percent of the state funds allocated for services for disabled people come from Medicaid.

Kaiser Family Foundation on Medicaid  http://www.kff.org/about/kcmu.cfm

The Kaiser Family Foundation website provides in-depth information on key health policy issues including Medicaid, Medicare

July’s Kaiser Health Tracking Poll reports further in depth on public opinion toward the Affordable Care Act (ACA) in the wake of last month’s key Supreme Court decision, with a special focus on the individual mandate and Medicaid expansion under the law.

  • See how disability blogs perceive the debate.  

Disability Scoop  http://www.disabilityscoop.com/

The Premier Source for Developmental Disability News

Hall Institute for Public Policy  http://hallnj.org/

The Hall Institute is a non-partisan, not-for-profit foundation established to explore social, economic, educational and cultural issues. Lots of discussion on disability issues

  • How does academia weigh in? 

AUCD  (Association of University Centers on Disabilities)  http://www.aucd.org/template/index.cfm

AUCD envisions a future in which everyone, including people living with developmental and other disabilities, are fully integrated, participating members of their communities. We envision a future in which culturally appropriate supports that lead to independence, productivity, and a satisfying quality of life are universally available across the life span.

  • Engage with our National Disability Organizations 

The Arc of the United States   http://www.thearc.org/

A Leader in Disability Rights -The largest national community-based organization advocating for and serving people with intellectual and developmental disabilities and their families.  We encompass all ages and all spectrums from autism, Down syndrome, Fragile X and various other developmental disabilities.

ACCSES – http://www.accses.org/

ACCSES represents more than 80 partner organizations across the country as the Voice of Disability Service Providers. Under the leadership of its CEO Terry R. Farmer, ACCSES works to promote and enhance community-based solutions that maximize employment and living opportunities for people with disabilities; through collaboration with government and other stakeholders to assure that services recognize and support the full potential of each person with a disability to enjoy a meaningful life.

  • Engage with our local Disability Organizations

The Arc of Delaware  http://www.thearcofdelaware.org/

Easter Seals of Delaware  http://de.easterseals.com/site/PageServer?pagename=DMDR_homepage

  •  Find and contact your local DE Congressmen

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